Hi I’m Sian : )

I have been diagnosed with vestibular migraines although my original diagnosis was Labyrinthitis.

My background was marketing and sales although I had to leave my full time job 2 years ago and I now work as a marketing freelancer from home.

Just over 2 years ago, after an extremely stressful period at work I caught a virus. I just shook it off assuming it was a cold but on my way out to lunch the ground felt like it was moving and I became very dizzy and nauseous. Things started to take on a dream like quality and I felt I wasn’t really present. I had to hold onto a wall to get back to the office and then the symptoms died down only to return a few days later but on a daily basis 24/7. The doctors believed it was Labyrinthitus and it would clear up in a few weeks, but 7 weeks later I was STILL extremely dizzy and unable to go back into work.

My symptoms included:
● Insomnia
● Anxiety
● Brain​ ​Fog
● Exhaustion
● Weak​ ​legs
● Dizziness
● Sensitivity​ ​to​ ​bright​ ​lights
● Sensitivity​ ​to​ ​loud​ ​noises

It took around a year and a few ENT appointments until I was sent to a neurologist that diagnosed me with vestibular migraines. In all, I visited around 11 doctors and specialists. Each gave me their personal opinion which ranged from Labyrinthitus, to anxiety, depression to Migraines. I fought against the anxiety diagnosis as I knew it only started once my balance issues began and it seemed like the easy way out for a lot of doctors that couldn’t admit to themselves they just didn’t have enough understanding of my condition.

Treatments I’ve tried:

– B12​ ​Vitamins​ ​-​ ​They definitely gave me back more energy
– 5-​ ​HTP​ ​-​ ​I found this greatly improved my anxiety and insomnia
– Acupuncture​ ​-​ ​This did actually work and settled my dizzy symptoms down for a few days but not completely and it was expensive to keep up with it. It also helped with my nausea and digestion.
– Natural​ ​Healing​ ​-​ ​Hands on healing definitely helped with the anxiety and I would get a better night’s sleep but although it helped lessen my symptoms, like acupuncture it didn’t clear it up completely.
– Physiotherapy​ ​-​ ​My trigger seems to be my neck and I often wonder if this resulted from an old whiplash surgery. Physio helps reduce the neck pain and lessens my migraine frequency.
– Medication​ ​-​ ​In my case I happen to be very med sensitive so medication such as epilepsy drugs, nortriptyline, stemetil, topiramate, amitriptyline, propranolol just made me feel like a complete zombie and I could not function day to day.

My vestibular disorder has impacted my life massively.

Friends​ ​–​ ​You don’t see them as much. In time, they stop inviting you to things, not out of spite, but realising you are limited when it comes to travelling on trains, busy bars, bright lights and loud music.

You​ ​LOOK​ ​Fine​ ​–​ ​I can scrub up pretty well each morning : ) But underneath I still can’t walk more than 20 minutes before I feel the need to go home as the floor is moving, or my legs are like jelly. You also end up having anxiety just trying to do normal everyday things, like get on the Tube, or cross a busy main road. As I’m a blogger, you will see photos of me smiling and laughing, but you won’t realise it took maybe 2 weeks of resting and building up
my strength to have that night/day out, and If I do, I can guarantee a few days/week resting afterwards.

Its​ ​Lonely​ ​–​ ​A lot of us had to give up careers we really loved when we were hit by this illness. I was working in travel and content and was ready to move into a dream job role when this kicked in. I had to give up my job and find a home based one – which I did – and luckily I really enjoy. But when you’re in your flat day in day out, for months on end, without your co workers, you start to get depressed and think of the life you had before, and is this my future?

Loved​ ​Ones​ ​–​ ​My partner is incredible, but he gets tired too, He works 10 hour days and he worries about me constantly. Can I go out today, have I used my laptop too much? Am I getting another attack?

I found VeDA through Facebook groups and articles posted for vestibular disorders. Reading other people’s stories made me realise it sounded like it was more migraine related and i sought out specialists in this area.

My words of wisdom to you:

Accepting that this is now your life and there is nothing you can do about it is not true but you literally have to get up each morning and fight to walk that 100 metres to the shop, even if you can’t see very well or feel you will fall over as with time, I managed to improve massively by testing myself each day. It’s very easy to become housebound with this condition, but living and working in London I had no choice but to go out everyday to busy supermarkets, catch busy tubes to doctors appointments and manage busy high streets packed full of people. I am certain that I am where I am today because rather than avoid my triggers I confronted them. Always remember it CAN be extremely hard to find compassion from loved ones as we look fine! I’ve often thought people would be more accepting if I had a physical symptom or illness.

Be aware that there are literally THOUSANDS of people suffering from this, most of them undiagnosed and it’s important you reach out to others in relevant support groups such as Facebook groups for vestibular conditions. I found that talking to others that could understand my symptoms and have compassion for me whilst others found it hard kept me sane.

My vision is a lot better than it was and although I have issues with walking too far, I have booked a long haul holiday for this year. I can also stand up for long periods of time, handle busy bars with loud music, drink and I started my own marketing business. My main aim is to start surfing again next year.

  • Vestibular Migraines – The key steps I took to get better

    Vestibular Migraines – The key steps I took to get better

    It’s been 6 years now since this all started, and I can finally say I am around 95%. I have not had a migraine in 2 months, I am not on medication, and I go out every weekend to socialise and go dancing etc. I STILL have triggers, but it is nowhere near as bad…


  • Vestibular Migraines – Learning to live with the ‘New’ Normal.

    Vestibular Migraines – Learning to live with the ‘New’ Normal.

    I have nearly hit the 6-year mark as a vestibular migraine sufferer. I know many have asked how I got back to ‘normal’ or should I say the NEW normal so here is a link to my Youtube channel for more info but this post is more about how I have to live my life…


  • The Fear Of It Coming Back.Chronic Illnesses & Starting A family.

    The Fear Of It Coming Back.Chronic Illnesses & Starting A family.

    I’ve just hit 40 and it has taken me through an unexpected whirlwind of emotions. The biggest is my biological clock…… the tick, tick ticking. You see, it’s not uncommon for women to have children later in life now, after a career, and getting to where they want to go, they has been a huge…


  • Migraine Book

    Please click below to download your FREE version of the ‘invisible fight’


  • Vestibular Migraines – Learning to live with the ‘New’ Normal.

    Vestibular Migraines – Learning to live with the ‘New’ Normal.

    I have nearly hit the 6-year mark as a vestibular migraine sufferer. I know many have asked how I got back to ‘normal’ or should I say the NEW normal so here is a link to my Youtube channel for more info but this post is more about how I have to live my life…


  • Vestibular Migraines – 4-year update!

    Vestibular Migraines – 4-year update!

    Vestibular migraines before and after….. Miracle cure? There is NO cure but I’m back to 95%! It’s been a complete mission with some big ups and downs but here is an idea of where I was 4 years ago. ⭐ I couldn’t walk properly for 2 years, the ground felt like it dropped beneath my feet…


  • My Vestibular Migraine Triggers

    My Vestibular Migraine Triggers

    I just prepared my migraine calendar for my neurologist in March. So after 4 years of not being able to work full time, I finally went back to a full-time role in September 2019 working as a learning support worker for a girl with special needs and also as a full time teaching assistant. I…


  • Vestibular Migraines – The key steps I took to get better

    Vestibular Migraines – The key steps I took to get better

    It’s been 6 years now since this all started, and I can finally say I am around 95%. I have not had a migraine in 2 months, I am not on medication, and I go out every weekend to socialise and go dancing etc. I STILL have triggers, but it is nowhere near as bad…


  • Vestibular Migraines – Signs I was Getting Better

    Vestibular Migraines – Signs I was Getting Better

    Hello all, so I covered how I was starting to get better after suffering from chronic vestibular migraines for nearly 3 years but I didn’t cover HOW I knew I was getting better and had quite a few questions on it so here we go! As you know with this illness, you are constantly taking…


  • How I Recovered From Vestibular Migraines

    How I Recovered From Vestibular Migraines

    I’ve suffered from vestibular migraines for nearly 3 years now, and although I did have migraines when I was a teen I never had them as severely!  When I say ‘recovered’ I will always have a sensitive migraine brain and have issues when over using my laptop but I mean recovery as in nearly got…


  • Never Have A Social Media Spelling Mistake Again With This FREE Tool!

    Never Have A Social Media Spelling Mistake Again With This FREE Tool!

    I have issues with my vision at the best of time as I suffer from vestibular migraines and because my symptoms effect me on a daily basis, at times it’s hard to see properly, let alone put together a constructive sentence and to think clearly! And that’s why I LOVE Grammarly! Grammarly automatically detects grammar,…


  • My Experience With Under Eye Fillers

    My Experience With Under Eye Fillers

    I must admit, in the past I was always rather judgemental to people that had any kind of cosmetic surgery. Maybe because most of the results had been over inflated lips or frozen faces.  So I would never have thought in a million years I would EVER have anything done, that was until I got sick…


  • The Top 3 Vestibular Migraine Triggers

    The Top 3 Vestibular Migraine Triggers

    This post has been created with doctors in mind….. I’ve been suffering from vestibular migraines for the past 19 months. We believe in my case it’s a genetic condition, as my mum has also been suffering from dizziness and migraines for the last 35 years. My treatment is currently Candesartan, to lower my blood pressure…


  • Learning Acceptance With A Chronic Illness

    Learning Acceptance With A Chronic Illness

    I’ve had a chronic vestibular condition for the last 17 months which led me to giving up my career, university degree and in general my Independence. It’s believed I have possible permanent damage to my inner ear and vestibular migraines meaning my vision is effected on a daily basis, and I frequently get hit with…


  • Labyrinthitus or Vestibular Migraines?

    Labyrinthitus or Vestibular Migraines?

    Considering I have been diagnosed with Labyrinthitus for well over a year which in fact, turned out to be vestibular migraines, sometimes it really is almost impossible to differentiate between the two. 16 months ago, after an extremely stressful period at work, I caught a virus which doctors believed was Labyrinthitus. It was only when…


  • Vestibular Migraines – And The 6 Things I Couldn’t Live Without

    Vestibular Migraines – And The 6 Things I Couldn’t Live Without

    I’m 15 months into living with chronic vestibular migraines and god how my life has turned around. Daily symptoms usually include; Insomnia Anxiety Brain Fog Exhaustion Weak legs Dizziness Rather than a moaning session, below are the 6 things that I couldn’t live without. Although not a cure, I’ve tried to seek out where possible…


  • Living With Vestibular Migraines

    Living With Vestibular Migraines

    I’ve been living with vestibular migraines for 15 months now. The main symptoms being the 24/7 dizziness, exhaustion, insomnia and anxiety. I have tried nearly every form of medication, epilepsy drugs, nortriptyline, stemetil, toporimate, amitriptyline, propranolol the list is endless. I seem to be very sensitive to meds so for most of them I couldnt…


Hi I’m Sian : )

I have been diagnosed with vestibular migraines although my original diagnosis was Labyrinthitis.

My background was marketing and sales although I had to leave my full time job 2 years ago and I now work as a marketing freelancer from home.

Just over 2 years ago, after an extremely stressful period at work I caught a virus. I just shook it off assuming it was a cold but on my way out to lunch the ground felt like it was moving and I became very dizzy and nauseous. Things started to take on a dream like quality and I felt I wasn’t really present. I had to hold onto a wall to get back to the office and then the symptoms died down only to return a few days later but on a daily basis 24/7. The doctors believed it was Labyrinthitus and it would clear up in a few weeks, but 7 weeks later I was STILL extremely dizzy and unable to go back into work.

My symptoms included:
● Insomnia
● Anxiety
● Brain​ ​Fog
● Exhaustion
● Weak​ ​legs
● Dizziness
● Sensitivity​ ​to​ ​bright​ ​lights
● Sensitivity​ ​to​ ​loud​ ​noises

It took around a year and a few ENT appointments until I was sent to a neurologist that diagnosed me with vestibular migraines. In all, I visited around 11 doctors and specialists. Each gave me their personal opinion which ranged from Labyrinthitus, to anxiety, depression to Migraines. I fought against the anxiety diagnosis as I knew it only started once my balance issues began and it seemed like the easy way out for a lot of doctors that couldn’t admit to themselves they just didn’t have enough understanding of my condition.

Treatments I’ve tried:

– B12​ ​Vitamins​ ​-​ ​They definitely gave me back more energy
– 5-​ ​HTP​ ​-​ ​I found this greatly improved my anxiety and insomnia
– Acupuncture​ ​-​ ​This did actually work and settled my dizzy symptoms down for a few days but not completely and it was expensive to keep up with it. It also helped with my nausea and digestion.
– Natural​ ​Healing​ ​-​ ​Hands on healing definitely helped with the anxiety and I would get a better night’s sleep but although it helped lessen my symptoms, like acupuncture it didn’t clear it up completely.
– Physiotherapy​ ​-​ ​My trigger seems to be my neck and I often wonder if this resulted from an old whiplash surgery. Physio helps reduce the neck pain and lessens my migraine frequency.
– Medication​ ​-​ ​In my case I happen to be very med sensitive so medication such as epilepsy drugs, nortriptyline, stemetil, topiramate, amitriptyline, propranolol just made me feel like a complete zombie and I could not function day to day.

My vestibular disorder has impacted my life massively.

Friends​ ​–​ ​You don’t see them as much. In time, they stop inviting you to things, not out of spite, but realising you are limited when it comes to travelling on trains, busy bars, bright lights and loud music.

You​ ​LOOK​ ​Fine​ ​–​ ​I can scrub up pretty well each morning : ) But underneath I still can’t walk more than 20 minutes before I feel the need to go home as the floor is moving, or my legs are like jelly. You also end up having anxiety just trying to do normal everyday things, like get on the Tube, or cross a busy main road. As I’m a blogger, you will see photos of me smiling and laughing, but you won’t realise it took maybe 2 weeks of resting and building up
my strength to have that night/day out, and If I do, I can guarantee a few days/week resting afterwards.

Its​ ​Lonely​ ​–​ ​A lot of us had to give up careers we really loved when we were hit by this illness. I was working in travel and content and was ready to move into a dream job role when this kicked in. I had to give up my job and find a home based one – which I did – and luckily I really enjoy. But when you’re in your flat day in day out, for months on end, without your co workers, you start to get depressed and think of the life you had before, and is this my future?

Loved​ ​Ones​ ​–​ ​My partner is incredible, but he gets tired too, He works 10 hour days and he worries about me constantly. Can I go out today, have I used my laptop too much? Am I getting another attack?

I found VeDA through Facebook groups and articles posted for vestibular disorders. Reading other people’s stories made me realise it sounded like it was more migraine related and i sought out specialists in this area.

My words of wisdom to you:

Accepting that this is now your life and there is nothing you can do about it is not true but you literally have to get up each morning and fight to walk that 100 metres to the shop, even if you can’t see very well or feel you will fall over as with time, I managed to improve massively by testing myself each day. It’s very easy to become housebound with this condition, but living and working in London I had no choice but to go out everyday to busy supermarkets, catch busy tubes to doctors appointments and manage busy high streets packed full of people. I am certain that I am where I am today because rather than avoid my triggers I confronted them. Always remember it CAN be extremely hard to find compassion from loved ones as we look fine! I’ve often thought people would be more accepting if I had a physical symptom or illness.

Be aware that there are literally THOUSANDS of people suffering from this, most of them undiagnosed and it’s important you reach out to others in relevant support groups such as Facebook groups for vestibular conditions. I found that talking to others that could understand my symptoms and have compassion for me whilst others found it hard kept me sane.

My vision is a lot better than it was and although I have issues with walking too far, I have booked a long haul holiday for this year. I can also stand up for long periods of time, handle busy bars with loud music, drink and I started my own marketing business. My main aim is to start surfing again next year.

  • Vestibular Migraines – The key steps I took to get better

    Vestibular Migraines – The key steps I took to get better

    It’s been 6 years now since this all started, and I can finally say I am around 95%. I have not had a migraine in 2 months, I am not on medication, and I go out every weekend to socialise and go dancing etc. I STILL have triggers, but it is nowhere near as bad…


  • Vestibular Migraines – Learning to live with the ‘New’ Normal.

    Vestibular Migraines – Learning to live with the ‘New’ Normal.

    I have nearly hit the 6-year mark as a vestibular migraine sufferer. I know many have asked how I got back to ‘normal’ or should I say the NEW normal so here is a link to my Youtube channel for more info but this post is more about how I have to live my life…


  • The Fear Of It Coming Back.Chronic Illnesses & Starting A family.

    The Fear Of It Coming Back.Chronic Illnesses & Starting A family.

    I’ve just hit 40 and it has taken me through an unexpected whirlwind of emotions. The biggest is my biological clock…… the tick, tick ticking. You see, it’s not uncommon for women to have children later in life now, after a career, and getting to where they want to go, they has been a huge…


  • Migraine Book

    Please click below to download your FREE version of the ‘invisible fight’


  • Vestibular Migraines – Learning to live with the ‘New’ Normal.

    Vestibular Migraines – Learning to live with the ‘New’ Normal.

    I have nearly hit the 6-year mark as a vestibular migraine sufferer. I know many have asked how I got back to ‘normal’ or should I say the NEW normal so here is a link to my Youtube channel for more info but this post is more about how I have to live my life…


  • Vestibular Migraines – 4-year update!

    Vestibular Migraines – 4-year update!

    Vestibular migraines before and after….. Miracle cure? There is NO cure but I’m back to 95%! It’s been a complete mission with some big ups and downs but here is an idea of where I was 4 years ago. ⭐ I couldn’t walk properly for 2 years, the ground felt like it dropped beneath my feet…


  • My Vestibular Migraine Triggers

    My Vestibular Migraine Triggers

    I just prepared my migraine calendar for my neurologist in March. So after 4 years of not being able to work full time, I finally went back to a full-time role in September 2019 working as a learning support worker for a girl with special needs and also as a full time teaching assistant. I…


  • Vestibular Migraines – The key steps I took to get better

    Vestibular Migraines – The key steps I took to get better

    It’s been 6 years now since this all started, and I can finally say I am around 95%. I have not had a migraine in 2 months, I am not on medication, and I go out every weekend to socialise and go dancing etc. I STILL have triggers, but it is nowhere near as bad…


  • Vestibular Migraines – Signs I was Getting Better

    Vestibular Migraines – Signs I was Getting Better

    Hello all, so I covered how I was starting to get better after suffering from chronic vestibular migraines for nearly 3 years but I didn’t cover HOW I knew I was getting better and had quite a few questions on it so here we go! As you know with this illness, you are constantly taking…


  • How I Recovered From Vestibular Migraines

    How I Recovered From Vestibular Migraines

    I’ve suffered from vestibular migraines for nearly 3 years now, and although I did have migraines when I was a teen I never had them as severely!  When I say ‘recovered’ I will always have a sensitive migraine brain and have issues when over using my laptop but I mean recovery as in nearly got…


  • Never Have A Social Media Spelling Mistake Again With This FREE Tool!

    Never Have A Social Media Spelling Mistake Again With This FREE Tool!

    I have issues with my vision at the best of time as I suffer from vestibular migraines and because my symptoms effect me on a daily basis, at times it’s hard to see properly, let alone put together a constructive sentence and to think clearly! And that’s why I LOVE Grammarly! Grammarly automatically detects grammar,…


  • My Experience With Under Eye Fillers

    My Experience With Under Eye Fillers

    I must admit, in the past I was always rather judgemental to people that had any kind of cosmetic surgery. Maybe because most of the results had been over inflated lips or frozen faces.  So I would never have thought in a million years I would EVER have anything done, that was until I got sick…


  • The Top 3 Vestibular Migraine Triggers

    The Top 3 Vestibular Migraine Triggers

    This post has been created with doctors in mind….. I’ve been suffering from vestibular migraines for the past 19 months. We believe in my case it’s a genetic condition, as my mum has also been suffering from dizziness and migraines for the last 35 years. My treatment is currently Candesartan, to lower my blood pressure…


  • Learning Acceptance With A Chronic Illness

    Learning Acceptance With A Chronic Illness

    I’ve had a chronic vestibular condition for the last 17 months which led me to giving up my career, university degree and in general my Independence. It’s believed I have possible permanent damage to my inner ear and vestibular migraines meaning my vision is effected on a daily basis, and I frequently get hit with…


  • Labyrinthitus or Vestibular Migraines?

    Labyrinthitus or Vestibular Migraines?

    Considering I have been diagnosed with Labyrinthitus for well over a year which in fact, turned out to be vestibular migraines, sometimes it really is almost impossible to differentiate between the two. 16 months ago, after an extremely stressful period at work, I caught a virus which doctors believed was Labyrinthitus. It was only when…


  • Vestibular Migraines – And The 6 Things I Couldn’t Live Without

    Vestibular Migraines – And The 6 Things I Couldn’t Live Without

    I’m 15 months into living with chronic vestibular migraines and god how my life has turned around. Daily symptoms usually include; Insomnia Anxiety Brain Fog Exhaustion Weak legs Dizziness Rather than a moaning session, below are the 6 things that I couldn’t live without. Although not a cure, I’ve tried to seek out where possible…


  • Living With Vestibular Migraines

    Living With Vestibular Migraines

    I’ve been living with vestibular migraines for 15 months now. The main symptoms being the 24/7 dizziness, exhaustion, insomnia and anxiety. I have tried nearly every form of medication, epilepsy drugs, nortriptyline, stemetil, toporimate, amitriptyline, propranolol the list is endless. I seem to be very sensitive to meds so for most of them I couldnt…